Top 40 Crohn's Influencers in 2026
Crohn's Influencers
Here are Top 40 Crohn's Influencers to Follow on Instagram in 2026
1. Amy Dowden
Bio @bbcstrictly💃
@hunted_hq winner 2026
@artinmotion.dance
Strictly Amy:cancer and me@bbciplayer
📕Dancing in the Rain
enq:*****@cloud9management.co.uk Instagram Handle @amy_dowden Instagram Followers 719.1K Type Macro Gender Female Get Email Contact Request 298 Crohn's Instagram Influencers with email contacts in a spreadsheet or csv file. Email us at [email protected] Email us
2. Mesha Moinirad
Bio I educate & support those suffering with invisible disabilities
TikTok 4.8M-YouTube 1.6M
Enquiries: *****@connectmgt.com
Ambassador @coloplast.uk Instagram Handle @mrcolitiscrohns Instagram Followers 394.4K Follower Growth (3mo) +8% Type Macro Gender Male Get Email Contact
3. Natalie Hayden
Bio TV anchor + reporter turned IBD advocate
Crohn’s since 2005
Sharing news you can use about chronic illness
Mom of 3
⬇️ Blog: Lights, Camera, Crohn’s *****@gmail.com Instagram Handle @natalieannhayden Instagram Followers 10.8K Follower Growth (3mo) +2% Type Micro Gender Female lightscameracrohns.com/blog + Follow Get Email Contact
4. Tina Aswani Omprakash
Bio 🏆 Nonprofit Leader: Ostomate & Crohn’s Sjogren’s HS IBS-C SIBO Gastroparesis Endometriosis
💫 CEO of @saia.gi @ibdesis 🧿
💥 Breaking cultural barriers *****@ownyourcrohns.com Instagram Handle @ownyourcrohns Instagram Followers 13.9K Follower Growth (3mo) +3% Type Micro Gender Female ownyourcrohns.com/blog + Follow Get Email Contact
5. Amber Tresca
Bio #IBD, #jpouch, mom of 2. Independent healthcare journalist and medical writer. Award-winning podcast producer & editor. Creator and host, About IBD. *****@gmail.com Instagram Handle @about_ibd Instagram Followers 3.2K Follower Growth (3mo) +5% Type Nano Gender Female aboutibd.com/category/podcast + Follow Get Email Contact
6. Jess Grossman
Bio The original ostomy model
rep[at]jessgrossman[dot]com
Actor, model, Crohn’s, ostomy, and now cancer. Founder @uncoverostomy, CEO @insocial.ca 💕 *****@jessgrossman.com Instagram Handle @jessgrossman Instagram Followers 44.9K Type Micro Gender Female Get Email Contact
7. Gaylyn Henderson
Bio #GutlessandGlamorous
Empowering those living with an ostomy & erasing the negative stigma
.
.
Learn more:👇🏽 *****@gutlessandglamorous.com Instagram Handle @gutlessandglamorous Instagram Followers 9.6K Type Nano Gender Female Get Email Contact
8. Sara Levitt
Bio Crohn’s & Ostomy Advocate & Speaker
💌 *****@dulcedo.com 📍Montreal
Seen in People, Maxim, Time & more
Miss Universe Canada 2025 Top 15 Instagram Handle @saralevs Instagram Followers 56.9K Follower Growth (3mo) +8% Type Micro Gender Female Get Email Contact
9. Yasmin Rigueto
Bio 🌻Te ajudo a conviver com uma doença sem cura!
💌 *****@gmail.com
📍RJ
100 receitas aqui👇 Instagram Handle @meudiariodecrohn Instagram Followers 62.3K Follower Growth (3mo) +2% Type Micro Gender Female Get Email Contact
10. Manie de Andrade
Bio Aqui ninguém precisa parecer bem quando não está
👩🏼⚕️ Enfermeira + paciente de Crohn
🩵 Embaixadora @coloplastestomia
DII, ostomia e vida real *****@gmail.com Instagram Handle @descrohnplicando Instagram Followers 19.4K Follower Growth (3mo) +3% Type Micro Gender Female Get Email Contact
11. Ashley Hurst
Bio We help those living with IBD reduce symptoms and improve chance of remission. We also have IBD too 💜
⬇️ Need Help Start Here ⬇️ *****@crohnsandcolitisdietitians.com Instagram Handle @crohns_and_colitis_dietitian Instagram Followers 18.6K Follower Growth (3mo) +4% Type Micro Gender Female crohnsandcolitisdietitians.c.. + Follow Get Email Contact
12. Ziyad
Bio 🔬| NHS Radiographer to IBD PhD Researcher
💉| Living with Crohn’s Disease
💩| Making IBD make sense
📚| New book out now ↓ *****@outlook.com Instagram Handle @thegrumblinggut Instagram Followers 15.5K Follower Growth (3mo) +6% Type Micro Gender Male Get Email Contact
13. Joel Nixon
Bio Online Coach | Ostomate | Crohn’s Warrior
Helping you build strength & confidence with IBD 💪🏾
Fitness | Ostomy Life📍@jaclynnixon_ 💍God 1st 🙏🏾 *****@yahoo.com Instagram Handle @crohnically.fit Instagram Followers 17.4K Type Micro Gender Male Get Email Contact
14. Vonnie
Bio ‧₊˚✧Vonnie✧˚₊‧
Crohn’s 25 years.
Colostomy 16 years.
Barbie butt 10 years 🍑
@saltshealthcare Advocate.
Epilepsy 🧠
AS
Mum to girls 👧🏽 Instagram Handle @crohns.mummy Instagram Followers 11.5K Follower Growth (3mo) +2% Type Micro Gender Female Get Email Contact
15. Lenette Sparacino
Bio Crohn’s disease | Endometriosis
#IBD advocate sharing education, support, hope and my journey with positivity ✨ •#Simlandi• 📍USA *****@gmail.com Instagram Handle @_lifewithcrohnsdisease_ Instagram Followers 10.9K Follower Growth (3mo) +1% Type Micro Gender Female Get Email Contact
16. Eloise Turner
Bio ✨ Dietitian & Nutritionist living with Crohn’s Disease
🤝 Helping others with IBD achieve food freedom
💛 DM me “IBD123” to start living with confidence *****@gmail.com Instagram Handle @ibddietitianeloise Instagram Followers 7.7K Follower Growth (3mo) +9% Type Nano Gender Female Get Email Contact
17. Julia Barnett
Bio Vivendo com Crohn sem deixar de viver 🤍
Treino, rotina e hábitos que me fazem bem
Atlanta 🇺🇸🇧🇷
💌 *****@gmail.com Instagram Handle @falandodecrohn Instagram Followers 7.9K Follower Growth (3mo) +6% Type Nano Gender Female Get Email Contact
18. Emma
Bio 🦋 runner | doctor | crohn’s disease
💊 Chronically ill. Full of 💩
🔜 Valencia marathon 🇪🇸
📧 *****@gmail.com
📍🇨🇦 Instagram Handle @crohnsrunner_em Instagram Followers 5.4K Follower Growth (3mo) +39% Type Nano Gender Female Get Email Contact
19. Liam Lambert
Bio 🔥 I help people with a Stoma or Crohn's Disease
⚡ Beat fatigue. Manage digestion. Build muscle
👇🏻 Learn more below *****@gmail.com Instagram Handle @ibdliam Instagram Followers 4.3K Type Nano Gender Male Get Email Contact
20. Ryan Van Voorhis
Bio 👨🏻🍳Cofounder and chef of @nudedudefood
💩Crohn’s disease patient/advocate
Links⤵️ *****@gmail.com Instagram Handle @rvanvoorhis Instagram Followers 6K Type Nano Gender Male Get Email Contact
21. Emma Forwell
Bio | Aussie Crohn’s disease & Ostomy advocate 🫶🏼
| IBD Nurse 💉
| IVF Mumma to Remy & Brooks 🥳
Welcome to my thoughts …👇🏼 Instagram Handle @stoma_susie Instagram Followers 2.8K Type Nano Gender Female Get Email Contact
22. Katie Neu
Bio IBD Patient Advocate
Crohn’s baddie for 21 yrs
Badass is a place for fellow baddies to feel validated. Bridging the gap between patients & industry 🍑 *****@gmail.com Instagram Handle @badass.w.a.bad.ass Instagram Followers 2.3K Follower Growth (3mo) +8% Type Nano Gender Female Get Email Contact
23. Aaron Blocker
Bio Executive Director @ Mississippi RDAC | Hypophosphatasia and Crohn’s Disease (IBD) Advocate | Change maker |
Learn More Below ⬇️
*Views My Own* *****@aaronblocker.com Instagram Handle @aaronblocker_ Instagram Followers 1.7K Follower Growth (3mo) +3% Type Nano Gender Male Get Email Contact
24. Lauren Leask
Bio I help people with Crohn’s disease & UC achieve freedom by gaining control of their gut, feeling energised and stress resilient. Work w/me ⤵️ *****@laurenleask.com Instagram Handle @laurenleaskcoach Instagram Followers 2.1K Follower Growth (3mo) +32% Type Nano Gender Female Get Email Contact
25. Suzy Burnett
Bio 🥰Mommy to 3 awesome kiddos
🦋Blogger and owner of Crohnie Mommy
💜*****@gmail.com to collaborate
💜Crohn’s disease WARRIOR Instagram Handle @crohniemommy Instagram Followers 3.4K Type Nano Gender Female crohniemommy.com + Follow Get Email Contact
26. Kayla White
Bio ostomate, fangirl, writer, IBD advocate✨
rva/nyu
*****@gmail.com
✊🏾🇵🇸🇨🇩🇭🇹🇸🇩
@chronicallytheillesthq
@crohnsandcolitisnccl Instagram Handle @wildflouwir Instagram Followers 2.7K Follower Growth (3mo) +5% Type Nano Gender Female Get Email Contact
27. Stacey Collins
Bio 📍Colorado🏔️ Board certified: GI Nutrition
☼ RDN for IBD + IBD surgeries 🥝
☼ j-poucher ☼ RD ☼ speaker ☼
Books closed🚫 Resources right this way⬇️ *****@staceycollinsnutrition.com Instagram Handle @staceynellc_rd Instagram Followers 3.4K Type Nano Gender Female Get Email Contact
28. Kimberly Hooks
Bio National IBD Patient Advocate
Ulcerative Colitis → Ostomy → J-Pouch 💜
Featured in TIME & WebMD
Founder • kimberlymhooks.com
✨ Faith. Family. Advocacy *****@gmail.com Instagram Handle @kimberlymhooks Instagram Followers 3.2K Follower Growth (3mo) +5% Type Nano Gender Female Get Email Contact
29. Alfie Dizz
Bio Healing Crohns Disease naturally,Diet & Lifestyle🥩🥛🥊🧘♂️Follow @thedizzles11 for bus / travel content 🏖️ 🚎 *****@gmail.com Instagram Handle @alfsworldd Instagram Followers 52.4K Type Micro Gender Male Get Email Contact
30. Kristen Elizabeth
Bio Chronic illness w/ an ostomy | Life in my 30s | Travel | Be the light 💜 *****@gmail.com Instagram Handle @kristenschronicles Instagram Followers 8.5K Type Nano Gender Female Get Email Contact
31. Gabby
Bio "Go through things, grow through things" 🦋
• Permanent ileostomy 2019 💩
• Registered Nurse 👩🏼⚕️ Instagram Handle @healthyhappygab_ Instagram Followers 5.7K Follower Growth (3mo) +1% Type Nano Gender Female Get Email Contact
32. Georgi Shirley
Bio ✈️Next Stop: 🇫🇷🇬🇧🇹🇭
💜 Crohns Disease, Ileostomy, Fibromyalgia & Arthritis
🗺️Entrepreneur @keepsakegetaways
🌎Inspiring Travel Lovers
🐶Pet Gun Dog Mum Instagram Handle @crohnswarrior_travels Instagram Followers 1.5K Type Nano Gender Female Get Email Contact
33. Jessie
Bio crohns stoma & k pop girly
26
𑣲⋆⟭⟬⁷.ִֶָ ˖ ࣪⊹ᥴꪮꫀ᥅₊ ✵ ₛₜᵣₐᵧᵏᶦᵈˢ!
can you get gut feelings if you don’t have a gut
@justjessdaily *****@gmail.com Instagram Handle @justjessyapping Instagram Followers 4.7K Follower Growth (3mo) +313% Type Nano Gender Female Get Email Contact
34. Meghan Cary Brown
Bio 💖 Your Ostomy Bestie Making Ostomy Life FUN! 🎊
✨Ostomy | Motherhood | Body Positive | Crafty
📸 200K+ on TikTok
💌 *****@gmail.com Instagram Handle @emc_brown Instagram Followers 149.5K Type Macro Gender Female Get Email Contact
35. Thais Matos
Bio “A bolsinha não é o fim, mas o recomeço!”💜
🏃🏻♀️6x Meia Maratonista PCD♿️🔓21Km
🏅4/5 @mega.finisher 🇦🇷🇧🇷🇺🇾🇵🇾
⚖️ Advogada |🎤Palestrante
📍RJ-SP🇧🇷 *****@gmail.com Instagram Handle @eu.thaismatos Instagram Followers 41.3K Type Micro Gender Female Get Email Contact
36. Brian
Bio •Bedridden➡️Ironman🏊♂️🚲🏃
•Chronic Illness Advocate🥄
•Helping Spoonies with fitness, mental health, habits, & more #progressnotperfection
📍NYC
👇Links Instagram Handle @spoonieironman Instagram Followers 1.6K Type Nano Gender Male Get Email Contact
37. Nadia
Bio Nadia
💪🏻Colorectal Cancer Thriver
💜IBD Warrior
💙Ostomate
🥑Healthy Recipes
Raising awareness+empowering
others with invisible disabilities ✗ Instagram Handle @gutsygirldiaries Instagram Followers 3.5K Type Nano Gender Female Get Email Contact
38. Katarzyna Lancouch
Bio 💜Helping women calm autoimmune scalp itch, flakes & thinning hair
➡Education + routines | Results from lived Crohn’s experience
⬇️ Take the Hair Quiz *****@gmail.com Instagram Handle @kat.lancouch Instagram Followers 3.6K Follower Growth (3mo) -1% Type Nano Gender Female Get Email Contact
39. Ashley Ferguson
Bio Owner/Operator of @fly_feet_boutiqueandstyle
-God’s Favorite 🙏🏾
-Published Stylist 👗
-RunwayRipper💋
-Crohn’s Fighter 💜 *****@yahoo.com Instagram Handle @shoegameinsane Instagram Followers 7K Type Nano Gender Female Get Email Contact
40. Michelle Pickens
Bio neurospicy motherhood ✨
chronic illness side quests
getting dressed for my serotonin
⚓ annapolis, md
↓ outfits, oversharing & managed chaos *****@gmail.com Instagram Handle @crohnicallyblonde Instagram Followers 8K Follower Growth (3mo) +3% Type Nano crohnicallyblonde.com/blog + Follow Get Email Contact
See Also
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