Top 25 Cystic Fibrosis Influencers in 2026

1. Jess Meyrick

Bio 🌷 Qualified Norland Nanny. Early years professional & intentional parent enthusiast:👧🏼👶🏻 Daughter with Cystic Fibrosis / Son PGT IVF. Instagram Handle @thelittledreameruk Instagram Followers 361.1K Type Macro Gender Female Get Email Contact Request 173 Cystic Fibrosis Instagram Influencers with email contacts in a spreadsheet or csv file. Email us at anuj@feedspot.com Copy emailEmail us

2. Sophie Grace Holmes

Bio 🌍 World Record | 36 Marathons 36 Days💪 Breaking Limits with Cystic Fibrosis🏃🏼‍♀️ @runna code SOPHIEGRACE 📧 *****@outreachtalentgroup.com Instagram Handle @sophiegraceholmes Instagram Followers 193.1K Type Macro Gender Female Get Email Contact

3. Ben Mudge

Bio The Compassionate Coach📚15 years of coaching 🤌🏻Here to make health & fitness easier📕Buy my book 👇🏻 *****@benmudge.com Instagram Handle @benmudge_ Instagram Followers 118.9K Type Macro Gender Male Get Email Contact

4. Mary Frey

Bio Sharing the ups and downs of life with Cystic Fibrosis with my husband @peterfreylife and kiddos and hairless cat Harry on Youtube TheFreyLife! *****@peterfrey.org Instagram Handle @freyliving Instagram Followers 76.8K Type Micro Gender Female Get Email Contact

5. Caleigh Sarah Haber

Bio 💯 Health is Hot 💫Double Lung Transplant x2 | CF🧠Physical + Mental Health🗣️Patient Consultant + Advocate 💌 *****@fight2breathe.org Instagram Handle @fight2breathe Instagram Followers 71.3K Type Micro Gender Female Get Email Contact

6. Kate Eveling

Bio 🕯️ (idk what I’m doing) ✨mental health, unaesthetic life 🎬 new YouTube vlog every friday *****@theviewfromtheotherside.com Instagram Handle @thevftos Instagram Followers 58.9K Type Micro Gender Female Get Email Contact

7. Julia Rae

Bio act, sing, write, golf, dance, repeat. I run my own nonprofit @singingatthetopofmylungs 🩵 & I host @foreloveshow 👀⛳️ @playingthroughmovie Instagram Handle @itsjuliarae Instagram Followers 51.2K Type Micro Gender Female Get Email Contact

8. Jennifer Nelson

Bio cystic fibrosis, intestinal failure, tpn dependent, v-EDS, & whole lotta other complications and conditions. follow along for the ride!💛Romans 8:18💛 *****@live.com Instagram Handle @battling2breathe Instagram Followers 23.4K Type Micro Gender Female Get Email Contact

9. Ryan Mo

Bio Servant of Christ ✞ Cystic Fibrosis Advocate Faith&Fitness 📩: *****@gmail.com Instagram Handle @ryan_mo15 Instagram Followers 39.6K Type Micro Gender Male Get Email Contact

10. Mandie Rudd

Bio Thriving while fighting Cystic Fibrosis 🫁Miracle Mama x 3Navigating Grief and Life After Loss 👼🎤Speaking Engagements : Dominica - Feb 2026 *****@shermanmandie.com Instagram Handle @shermanmandie Instagram Followers 12.1K Type Micro Gender Female Get Email Contact

11. Gunner Esiason

Bio Saved by science 🧬Patient advocate 🫁Dad to Blinky, Blitzen, Kaz & Mieke 🐶🐶🧑🏼‍🦱👶🏻BC ➡️ Dartmouth 🦅🌲#cysticfibrosis *****@esiason.org Instagram Handle @esiason17g Instagram Followers 13.1K Type Micro Gender Male Get Email Contact

12. Salty Cysters

Bio •Lea & Tiff•Cystic Fibrosis Fighters🌹•Podcast Hosts🎧 @breathe_in_pod •Bicoastal Cysters w/ a passion to help the CF & chronic disease community💜🦋 *****@gmail.com Instagram Handle @saltycysters Instagram Followers 10.5K Type Micro Gender Female Get Email Contact

13. Jamesrich

Bio • Cystic Fibrosis Warrior/Advocate• Creator/Owner of @insight__fitness • Master trainer/ 🥊 coach• Host of @jamesscorner Instagram Handle @jamesrich23 Instagram Followers 8.2K Type Nano Gender Male Get Email Contact

14. Chelsea Stahl

Bio 🫁 Sharing the journey of life and motherhood living with cystic fibrosis 🧘🏽‍♀️ Yoga studio owner & teacher in the US Virgin Islands *****@googlemail.com Instagram Handle @salty_yogi Instagram Followers 5.6K Type Nano Gender Female Get Email Contact

15. Thomas John

Bio •@cf_ireland Ambassador •Advocate •𝖣𝗈𝗎𝖻𝗅𝖾 𝖫𝗎𝗇𝗀 𝖳𝗋𝖺𝗇𝗌𝗉𝗅𝖺𝗇𝗍/Cystic Fibrosis•T1Diabetic/Tourettes•@hairartist_tom_pelo_dollLilo Instagram Handle @thomasjhenry87 Instagram Followers 5.9K Type Nano Gender Male Get Email Contact

16. Alexie Babin

Bio 🩷 Bilingual Marketing and Communications Coordinator @cfcanada 🌸 Blog writer & Motivational Speaker 🫶🏼 My lungs are weak, but my voice isn’t ✨ Instagram Handle @alexie.babin Instagram Followers 4.4K Type Nano Gender Female Get Email Contact

17. Jamie

Bio ▫️Creator “Time Budgeting Method for Moms”▫️I teach Caregiver Moms to reclaim ⏳ + energy▫️Routines| Self-Care |Ditch Overwhelm▫️FREE Sunday Reset👇🏼 *****@gmail.com Instagram Handle @drivingmissdesi Instagram Followers 2.7K Type Nano Gender Female Get Email Contact

18. Lauren Black

Bio I'm an adult living with cystic fibrosis! Welcome to this side of my life 🙂 *****@gmail.com Instagram Handle @laurenslifesavers Instagram Followers 1.3K Type Nano Gender Female Get Email Contact

19. Jax

Bio 👶🏻 Mum to George, 5 👶🏻 Ollie, 1 with cystic fibrosis 🧩 Founder of @playshedpuzzles 📷 Lover of photography, travel & coffee 📍 Manchester, UK *****@gmail.com Instagram Handle @mummyinmanchester Instagram Followers 1.1K Type Nano Gender Female Get Email Contact

20. Ella Balasa

Bio 👩‍💻Patient Advocate and Engagement Consultant🔗Healthcare Collaborator🗣Speaker 📝Writer 💜cystic fibrosis Personal: @thisgirlellaFind my work 👇 *****@gmail.com Instagram Handle @ellabalasaadvocacy Instagram Followers 1.2K Type Nano Gender Female Get Email Contact

21. Osiris Daniels

Bio I have Cystic Fibrosis. I'm on Trikafta which has been life changing.Every end is a new beginning. Instagram Handle @a_cystic_life Instagram Followers 842 Type Nano Gender Male Get Email Contact

22. Manu

Bio 🌬Cystic Fibrosis fighter🐾Hooman mum of Ayla @ayla_the_chocolatelab 🤸🏻‍♀️Training and playing lover #fitcozza✨Enjoy life✨ *****@gmail.com Instagram Handle @geneticwontknockmedown Instagram Followers 763 Type Nano Gender Female Get Email Contact

23. Ari & Joe

Bio Identical twin sisters with Cystic Fibrosis. 🏃‍♀️🏃‍♀️ Instagram Handle @twin_cf_sisters Instagram Followers 897 Type Nano Gender Female Get Email Contact