Top 25 Cystic Fibrosis Influencers in 2025
Cystic Fibrosis Influencers
Here are Top 25 Cystic Fibrosis Influencers
1. Jess Meyrick
Bio Certified Early Years Practitioner Mindful & Conscious parenting 3 YO with Cystic Fibrosis Shop: @littledreamersnest Ask to repostInstagram Handle @thelittledreamerukInstagram Followers 305KType MacroGender Female Get Email Contact
2. Sophie Grace Holmes
Bio WR Holder 36 marathons 36 days Runner & Coach ♀️ Defying the odds Cystic FibrosisEnquires: ****@hypedmgt.coInstagram Handle @sophiegraceholmesInstagram Followers 176.7KType MacroGender Female Get Email Contact
3. Ben Mudge
Bio The Compassionate Coach14 years of coaching Here to make health & fitness easierBuy my book ****@benmudge.comInstagram Handle @benmudge_Instagram Followers 118.9KType MacroGender Male Get Email Contact
4. Mary Frey
Bio Sharing the ups and downs of life with Cystic Fibrosis with my husband @peterfreylife and kiddos and hairless cat Harry on Youtube TheFreyLife! ****@peterfrey.orgInstagram Handle @freylivingInstagram Followers 77.1KType MicroGender Female Get Email Contact
5. Caleigh Sarah Haber
Bio Health is Hot Patient Advocate || Rare + Genetic DiseaseWriter Speaker Survivor♻️2x Dbl Lung Transplant Cystic Fibrosis Diabetes ****@fight2breathe.orgInstagram Handle @fight2breatheInstagram Followers 72.2KType MicroGender Female Get Email Contact
6. Kate Eveling
Bio feel a little less alone & a little more connected founder of @evidentlyican ****@theviewfromtheotherside.comInstagram Handle @thevftosInstagram Followers 63KType MicroGender Female Get Email Contact
7. Julia Rae
Bio I love to act, write, golf, dance & sing. I run my own nonprofit @singingatthetopofmylungs & I host @deeperlookpod ️Instagram Handle @itsjuliaraeInstagram Followers 51.2KType MicroGender Female Get Email Contact
8. Jennifer Nelson
Bio Chronic Illness & Mental Health Advocatecystic fibrosis, v-eds, diabetes, intestinal failure, tpn, ileostomy n morebackup: @battling2breathe_ ****@live.comInstagram Handle @battling2breatheInstagram Followers 22.3KType MicroGender Female Get Email Contact
9. Ryan Mo
Bio Servant of Christ ✞ Cystic Fibrosis Advocate Fitness Content Creator @elysium.athletic Code:MoInstagram Handle @ryan_mo15Instagram Followers 25.1KType MicroGender Male Get Email Contact
10. Mandie Rudd
Bio Thriving while fighting Cystic Fibrosis Navigating Grief and Life After Loss ️Speaking Engagements : paused ****@shermanmandie.comInstagram Handle @shermanmandieInstagram Followers 12.1KType MicroGender Female Get Email Contact
11. Gunner Esiason
Bio Saved by science Patient advocate Dad to Blinky, Blitzen, Kaz & Mieke BC ➡️ Dartmouth #cysticfibrosis ****@esiason.orgInstagram Handle @esiason17gInstagram Followers 12.8KType MicroGender Male Get Email Contact
12. Salty Cysters
Bio •Lea & Tiff•Cystic Fibrosis Fighters•Podcast Hosts @breathe_in_pod •Bicoastal Cysters w/ a passion to help the CF & chronic disease community ****@gmail.comInstagram Handle @saltycystersInstagram Followers 10.7KType MicroGender Female Get Email Contact
13. Jamesrich
Bio • Cystic Fibrosis Warrior/Advocate• Creator/Owner of @insight__fitness • Master trainer/ coach• Host of @jamesscornerInstagram Handle @jamesrich23Instagram Followers 8.3KType MicroGender Male Get Email Contact
14. Chelsea Stahl
Bio Sharing the journey of life and motherhood living with cystic fibrosis ♀️ Yoga studio owner & teacher in the US Virgin Islands ****@googlemail.comInstagram Handle @salty_yogiInstagram Followers 5.6KType MicroGender Female Get Email Contact
15. Thomas John
Bio •@cf_ireland Ambassador •Advocate • /Cystic Fibrosis•T1Diabetic/Tourettes•@hairartist_tom_pelo_dollLiloDogDadInstagram Handle @thomasjhenry87Instagram Followers 5.8KType MicroGender Male Get Email Contact
16. Alexie Babin
Bio POV story of my lifeDeath is inevitable, live a life you’re proud of Patient-advocate @cfcanada Motivational speaker @vivreaveclafkInstagram Handle @alexie.babinInstagram Followers 4.5KType MicroGender Female Get Email Contact
17. Jamie
Bio ▫️Creator “Time Budgeting Method for Moms”▫️I teach Caregiver Moms to reclaim ⏳ + energy▫️Routines| Self-Care |Ditch Overwhelm▫️FREE Sunday Reset ****@gmail.comInstagram Handle @drivingmissdesiInstagram Followers 2.7KType MicroGender Female Get Email Contact
18. Lauren Black
Bio I'm an adult living with cystic fibrosis! Welcome to this side of my life 🙂 ****@gmail.comInstagram Handle @laurenslifesaversInstagram Followers 1.3KType MicroGender Female Get Email Contact
19. Jax
Bio Mum to George, 5 Ollie, 1 with cystic fibrosis Founder of @playshedpuzzles Lover of photography, travel & coffee Manchester, UK ****@gmail.comInstagram Handle @mummyinmanchesterInstagram Followers 1.1KType MicroGender Female Get Email Contact
20. Ella Balasa
Bio Patient Advocate and Engagement ConsultantHealthcare CollaboratorSpeaker Writer cystic fibrosis Personal: @thisgirlellaFind my work ****@gmail.comInstagram Handle @ellabalasaadvocacyInstagram Followers 1KType MicroGender Female Get Email Contact
21. Osiris Daniels
Bio I have Cystic Fibrosis. I'm on Trikafta which has been life changing.Every end is a new beginning.Instagram Handle @a_cystic_lifeInstagram Followers 836Type MicroGender Male Get Email Contact
22. Manu
Bio Cystic Fibrosis fighterHooman mum of Ayla @ayla_the_chocolatelab ♀️Training and playing lover #fitcozza✨Enjoy life✨ ****@gmail.comInstagram Handle @geneticwontknockmedownInstagram Followers 769Type MicroGender Female Get Email Contact
23. Ari & Joe
Bio Identical twin sisters with Cystic Fibrosis. 🏃♀️🏃♀️Instagram Handle @twin_cf_sistersInstagram Followers 879Type MicroGender Female Get Email Contact
24. Meckenna Rose
Bio ⚘ 𝘤𝘺𝘴𝘵𝘪𝘤 𝘧𝘪𝘣𝘳𝘰𝘴𝘪𝘴 𝘢𝘥𝘷𝘰𝘤𝘢𝘵𝘦✞ 𝘰𝘩 𝘩𝘰𝘸 𝘳𝘢𝘳𝘦 𝘢𝘯𝘥 𝘣𝘦𝘢𝘶𝘵𝘪𝘧𝘶𝘭 𝘪𝘵 𝘪𝘴 𝘵𝘰 𝘦𝘷𝘦𝘯 𝘦𝘹𝘪𝘴𝘵Instagram Handle @mckenna_pozsgaiInstagram Followers 848Type MicroGender Female Get Email Contact
25. Ruby Steuart
Bio southern md | emergency medicine PAcystic fibrosis fighter🌞🦋🦀🩺🫶🏼🕊️Instagram Handle @rubysteuartInstagram Followers 2.5KType MicroGender Female Get Email Contact
