Top 25 Cystic Fibrosis Influencers in 2025

1. Jess Meyrick

Bio 🌷 Certified Early Years Practitioner | Mindful parenting 🌻Daughter with Cystic Fibrosis 🛍️ Resources & Shop: @littledreamersnest 🌱 Ask to repostInstagram Handle @thelittledreamerukInstagram Followers 329.9KType MacroGender Female Get Email Contact Are you a creator? Submit your profile to get listed and be discovered by brands in your niche!Submit

2. Sophie Grace Holmes

Bio 🌎 WR Holder 36 marathons 36 days 🏆 Runner & Coach 🏃🏼‍♀️ Defying the odds Cystic FibrosisEnquires: ****@hypedmgt.coInstagram Handle @sophiegraceholmesInstagram Followers 179.2KType MacroGender Female Get Email Contact

3. Ben Mudge

Bio The Compassionate Coach📚14 years of coaching 🤌🏻Here to make health & fitness easier📕Buy my book 👇🏻 ****@benmudge.comInstagram Handle @benmudge_Instagram Followers 118.2KType MacroGender Male Get Email Contact

4. Mary Frey

Bio Sharing the ups and downs of life with Cystic Fibrosis with my husband @peterfreylife and kiddos and hairless cat Harry on Youtube TheFreyLife! ****@peterfrey.orgInstagram Handle @freylivingInstagram Followers 77.1KType MicroGender Female Get Email Contact

5. Caleigh Sarah Haber

Bio 💯 Health is Hot 📢 Patient Advocate || Rare + Genetic Disease📚Writer 🗣 Speaker🙌🏼 Survivor♻️2x Dbl Lung Transplant 🌹Cystic Fibrosis 💉Diabetes ****@fight2breathe.orgInstagram Handle @fight2breatheInstagram Followers 72KType MicroGender Female Get Email Contact

6. Kate Eveling

Bio feel a little less alone & a little more connected 💫founder of @evidentlyican 🤝💌 ****@theviewfromtheotherside.comInstagram Handle @thevftosInstagram Followers 62KType MicroGender Female Get Email Contact

7. Julia Rae

Bio I love to act, write, golf, dance & sing. I run my own nonprofit @singingatthetopofmylungs 🩵 & I host @deeperlookpod 🎙️Instagram Handle @itsjuliaraeInstagram Followers 51.2KType MicroGender Female Get Email Contact

8. Jennifer Nelson

Bio Chronic Illness & Mental Health Advocatecystic fibrosis, v-eds, diabetes, intestinal failure, tpn, ileostomy n morebackup: @battling2breathe_⛸️💙 ****@live.comInstagram Handle @battling2breatheInstagram Followers 22.7KType MicroGender Female Get Email Contact

9. Ryan Mo

Bio Servant of Christ ✞ Cystic Fibrosis Advocate Fitness Content Creator @elysium.athletic Code:MoInstagram Handle @ryan_mo15Instagram Followers 28.2KType MicroGender Male Get Email Contact

10. Mandie Rudd

Bio Thriving while fighting Cystic Fibrosis 🫁Navigating Grief and Life After Loss 👼🎤🎙️Speaking Engagements : paused ****@shermanmandie.comInstagram Handle @shermanmandieInstagram Followers 12.1KType MicroGender Female Get Email Contact

11. Jamesrich

Bio • Cystic Fibrosis Warrior/Advocate• Creator/Owner of @insight__fitness • Master trainer/ 🥊 coach• Host of @jamesscornerInstagram Handle @jamesrich23Instagram Followers 8.3KType NanoGender Male Get Email Contact

12. Thomas John

Bio •@cf_ireland Ambassador •Advocate •𝖣𝗈𝗎𝖻𝗅𝖾 𝖫𝗎𝗇𝗀 𝖳𝗋𝖺𝗇𝗌𝗉𝗅𝖺𝗇𝗍/Cystic Fibrosis•T1Diabetic/Tourettes•@hairartist_tom_pelo_dollLiloInstagram Handle @thomasjhenry87Instagram Followers 5.8KType NanoGender Male Get Email Contact

13. Alexie Babin

Bio 🫶🏼 POV story of my life🦋Death is inevitable, live a life you’re proud of🧬 Patient-advocate @cfcanada🦠 Motivational speaker @vivreaveclafkInstagram Handle @alexie.babinInstagram Followers 4.5KType NanoGender Female Get Email Contact

14. Jamie

Bio ▫️Creator “Time Budgeting Method for Moms”▫️I teach Caregiver Moms to reclaim ⏳ + energy▫️Routines| Self-Care |Ditch Overwhelm▫️FREE Sunday Reset👇🏼 ****@gmail.comInstagram Handle @drivingmissdesiInstagram Followers 2.7KType NanoGender Female Get Email Contact

15. Osiris Daniels

Bio I have Cystic Fibrosis. I'm on Trikafta which has been life changing.Every end is a new beginning.Instagram Handle @a_cystic_lifeInstagram Followers 836Type NanoGender Male Get Email Contact

16. Meckenna Rose

Bio ⚘ 𝘤𝘺𝘴𝘵𝘪𝘤 𝘧𝘪𝘣𝘳𝘰𝘴𝘪𝘴 𝘢𝘥𝘷𝘰𝘤𝘢𝘵𝘦✞ 𝘰𝘩 𝘩𝘰𝘸 𝘳𝘢𝘳𝘦 𝘢𝘯𝘥 𝘣𝘦𝘢𝘶𝘵𝘪𝘧𝘶𝘭 𝘪𝘵 𝘪𝘴 𝘵𝘰 𝘦𝘷𝘦𝘯 𝘦𝘹𝘪𝘴𝘵Instagram Handle @mckenna_pozsgaiInstagram Followers 850Type NanoGender Female Get Email Contact

17. Gunner Esiason

Bio Saved by science 🧬Patient advocate 🫁Dad to Blinky, Blitzen, Kaz & Mieke 🐶🐶🧑🏼‍🦱👶🏻BC ➡️ Dartmouth 🦅🌲#cysticfibrosis ****@esiason.orgInstagram Handle @esiason17gInstagram Followers 13KType MicroGender Male Get Email Contact

18. Chelsea Stahl

Bio 🫁 Sharing the journey of life and motherhood living with cystic fibrosis 🧘🏽‍♀️ Yoga studio owner & teacher in the US Virgin Islands ****@googlemail.comInstagram Handle @salty_yogiInstagram Followers 5.6KType NanoGender Female Get Email Contact

19. Lauren Black

Bio I'm an adult living with cystic fibrosis! Welcome to this side of my life 🙂 ****@gmail.comInstagram Handle @laurenslifesaversInstagram Followers 1.3KType NanoGender Female Get Email Contact

20. Jax

Bio 👶🏻 Mum to George, 5 👶🏻 Ollie, 1 with cystic fibrosis 🧩 Founder of @playshedpuzzles 📷 Lover of photography, travel & coffee 📍 Manchester, UK ****@gmail.comInstagram Handle @mummyinmanchesterInstagram Followers 1.1KType NanoGender Female Get Email Contact

21. Ella Balasa

Bio 👩‍💻Patient Advocate and Engagement Consultant🔗Healthcare Collaborator🗣Speaker 📝Writer 💜cystic fibrosis Personal: @thisgirlellaFind my work 👇 ****@gmail.comInstagram Handle @ellabalasaadvocacyInstagram Followers 1KType NanoGender Female Get Email Contact

22. Ruby Steuart

Bio southern mdemergency medicine PAInstagram Handle @rubysteuartInstagram Followers 2.5KType NanoGender Female Get Email Contact