Top 25 Cystic Fibrosis Influencers in 2025

1. Jess Meyrick

Bio 🌷 Conscious Parenting Enthusiast. Certified Early Years, Trained Maternity Nurse👧🏼👶🏻 Daughter with Cystic Fibrosis /PGT IVF. 💜 @littledreamersnestInstagram Handle @thelittledreameruk Instagram Followers 350.8K Type Macro Gender Female Get Email Contact Are you a creator? Submit your profile to get listed and be discovered by brands in your niche!Submit

2. Sophie Grace Holmes

Bio 🌍 World Record Holder | 36 Marathons in 36 Days🏃🏼‍♀️ Runner & Coach💪 Breaking Limits with Cystic Fibrosis📧 ****@outreachtalentgroup.comInstagram Handle @sophiegraceholmes Instagram Followers 181.8K Type Macro Gender Female Get Email Contact

3. Ben Mudge

Bio The Compassionate Coach📚14 years of coaching 🤌🏻Here to make health & fitness easier📕Buy my book 👇🏻 ****@benmudge.comInstagram Handle @benmudge_ Instagram Followers 116.9K Type Macro Gender Male Get Email Contact

4. Mary Frey

Bio Sharing the ups and downs of life with Cystic Fibrosis with my husband @peterfreylife and kiddos and hairless cat Harry on Youtube TheFreyLife! ****@peterfrey.orgInstagram Handle @freyliving Instagram Followers 77.1K Type Micro Gender Female Get Email Contact

5. Caleigh Sarah Haber

Bio 💯 Health is Hot 💫Double Lung Transplant x2 | CF🧠Healing + Mental Health🌍Travel | Advocacy | Diabetes Life🎙️Host of Our Fight to Breathe Podcast ****@fight2breathe.orgInstagram Handle @fight2breathe Instagram Followers 71.7K Type Micro Gender Female Get Email Contact

6. Kate Eveling

Bio feel a little less alone & a little more connected 💫founder of @evidentlyican 🤝💌 ****@theviewfromtheotherside.comInstagram Handle @thevftos Instagram Followers 60.3K Type Micro Gender Female Get Email Contact

7. Julia Rae

Bio act, sing, write, golf, dance, repeat. I run my own nonprofit @singingatthetopofmylungs 🩵 & I host @deeperlookpod 🎙️Instagram Handle @itsjuliarae Instagram Followers 51K Type Micro Gender Female Get Email Contact

8. Jennifer Nelson

Bio Chronic Illness, Mental Health AdvocateCystic fibrosis, intestinal failure, TPN dependent & more. ‼️DM FOR PERMISSION FOR REPOST CREDIT!‼️ ****@live.comInstagram Handle @battling2breathe Instagram Followers 23.3K Type Micro Gender Female Get Email Contact

9. Ryan Mo

Bio Servant of Christ ✞ Cystic Fibrosis Advocate Fitness Content Creator @elysium.athletic Code:MoInstagram Handle @ryan_mo15 Instagram Followers 39.1K Type Micro Gender Male Get Email Contact

10. Mandie Rudd

Bio Thriving while fighting Cystic Fibrosis 🫁Miracle Mama x 3Navigating Grief and Life After Loss 👼🎤Speaking Engagements : Books Open ⬇️ email below ****@shermanmandie.comInstagram Handle @shermanmandie Instagram Followers 12.1K Type Micro Gender Female Get Email Contact

11. Jamesrich

Bio • Cystic Fibrosis Warrior/Advocate• Creator/Owner of @insight__fitness • Master trainer/ 🥊 coach• Host of @jamesscornerInstagram Handle @jamesrich23 Instagram Followers 8.3K Type Nano Gender Male Get Email Contact

12. Chelsea Stahl

Bio 🫁 Sharing the journey of life and motherhood living with cystic fibrosis 🧘🏽‍♀️ Yoga studio owner & teacher in the US Virgin Islands ****@googlemail.comInstagram Handle @salty_yogi Instagram Followers 5.6K Type Nano Gender Female Get Email Contact

13. Thomas John

Bio •@cf_ireland Ambassador •Advocate •𝖣𝗈𝗎𝖻𝗅𝖾 𝖫𝗎𝗇𝗀 𝖳𝗋𝖺𝗇𝗌𝗉𝗅𝖺𝗇𝗍/Cystic Fibrosis•T1Diabetic/Tourettes•@hairartist_tom_pelo_dollLiloInstagram Handle @thomasjhenry87 Instagram Followers 5.8K Type Nano Gender Male Get Email Contact

14. Alexie Babin

Bio 🫶🏼 POV story of my life🦋Death is inevitable, live a life you’re proud of🧬 Patient-advocate @cfcanada🦠 Motivational speaker @vivreaveclafkInstagram Handle @alexie.babin Instagram Followers 4.5K Type Nano Gender Female Get Email Contact

15. Ella Balasa

Bio 👩‍💻Patient Advocate and Engagement Consultant🔗Healthcare Collaborator🗣Speaker 📝Writer 💜cystic fibrosis Personal: @thisgirlellaFind my work 👇 ****@gmail.comInstagram Handle @ellabalasaadvocacy Instagram Followers 1.1K Type Nano Gender Female Get Email Contact

16. Osiris Daniels

Bio I have Cystic Fibrosis. I'm on Trikafta which has been life changing.Every end is a new beginning.Instagram Handle @a_cystic_life Instagram Followers 841 Type Nano Gender Male Get Email Contact

17. Ari & Joe

Bio Identical twin sisters with Cystic Fibrosis. 🏃‍♀️🏃‍♀️Instagram Handle @twin_cf_sisters Instagram Followers 890 Type Nano Gender Female Get Email Contact

18. Gunner Esiason

Bio Saved by science 🧬Patient advocate 🫁Dad to Blinky, Blitzen, Kaz & Mieke 🐶🐶🧑🏼‍🦱👶🏻BC ➡️ Dartmouth 🦅🌲#cysticfibrosis ****@esiason.orgInstagram Handle @esiason17g Instagram Followers 13.1K Type Micro Gender Male Get Email Contact

19. Jamie

Bio ▫️Creator “Time Budgeting Method for Moms”▫️I teach Caregiver Moms to reclaim ⏳ + energy▫️Routines| Self-Care |Ditch Overwhelm▫️FREE Sunday Reset👇🏼 ****@gmail.comInstagram Handle @drivingmissdesi Instagram Followers 2.7K Type Nano Gender Female Get Email Contact

20. Lauren Black

Bio I'm an adult living with cystic fibrosis! Welcome to this side of my life 🙂 ****@gmail.comInstagram Handle @laurenslifesavers Instagram Followers 1.3K Type Nano Gender Female Get Email Contact

21. Jax

Bio 👶🏻 Mum to George, 5 👶🏻 Ollie, 1 with cystic fibrosis 🧩 Founder of @playshedpuzzles 📷 Lover of photography, travel & coffee 📍 Manchester, UK ****@gmail.comInstagram Handle @mummyinmanchester Instagram Followers 1.1K Type Nano Gender Female Get Email Contact

22. Ruby Steuart

Bio southern mdemergency medicine PAInstagram Handle @rubysteuart Instagram Followers 2.5K Type Nano Gender Female Get Email Contact