Top 25 Cystic Fibrosis Influencers in 2026

1. Jess Meyrick

Bio Qualified in Early Years • Intentional parent • Advocate • Daughter with Cystic Fibrosis & Son PGT IVF. Childcare Agency @sproggle_ @thenannyacademy_ Instagram Handle @thelittledreameruk + Follow Instagram Followers 359.6K Type Macro Gender Female Get Email Contact Request 175 Cystic Fibrosis Instagram Influencers with email contacts in a spreadsheet or csv file. Email us at [email protected] Copy emailEmail us

2. Sophie Grace Holmes

Bio Breaking limits with Cystic FibrosisRunning is my thing 🏃‍♀️@runna | code SOPHIEGRACE📩 *****@outreachtalentgroup.com Instagram Handle @sophiegraceholmes + Follow Instagram Followers 190K Follower Growth (2mo) +1% Type Macro Gender Female Get Email Contact

3. Ben Mudge

Bio The Compassionate Coach📚16 years of fitness coaching📕Author ‘Fitness Without Limits’💻Apply to work with me 👇🏻 *****@benmudge.com Instagram Handle @benmudge_ + Follow Instagram Followers 116.3K Follower Growth (2mo) -2% Type Macro Gender Male Get Email Contact

4. Mary Frey

Bio Sharing the ups and downs of life with Cystic Fibrosis with my husband @peterfreylife and kiddos and hairless cat Harry on Youtube TheFreyLife! *****@peterfrey.org Instagram Handle @freyliving + Follow Instagram Followers 75.7K Follower Growth (2mo) -2% Type Micro Gender Female Get Email Contact

5. Caleigh Sarah Haber

Bio 💯 Living proof that survival doesn’t have to look limited 💫 Chronic Illness, transplant life + rare genetic disease💬 Connect + stay awhile *****@fight2breathe.org Instagram Handle @fight2breathe + Follow Instagram Followers 71.9K Type Micro Gender Female Get Email Contact

6. Julia Rae

Bio founder @scoreloveshowrunning NYC marathon for @team_boomer_usa actress · singer · CF advocate📍 probably on a golf course Instagram Handle @itsjuliarae + Follow Instagram Followers 49.9K Follower Growth (2mo) -2% Type Micro Gender Female Get Email Contact

7. Ryan Mo

Bio Servant of Christ ✞ Cystic Fibrosis Advocate Gym•Faith•Motivation 📩: *****@gmail.com Instagram Handle @ryan_mo15 + Follow Instagram Followers 39.8K Follower Growth (2mo) +1% Type Micro Gender Male Get Email Contact

8. Jennifer Nelson

Bio cystic fibrosis, intestinal failure, tpn dependent, v-EDS, & whole lotta other complications and conditions. follow along for the ride!@returntoskate *****@live.com Instagram Handle @battling2breathe + Follow Instagram Followers 23.3K Follower Growth (2mo) -1% Type Micro Gender Female Get Email Contact

9. Mandie Rudd

Bio Thriving while fighting Cystic Fibrosis 🫁Miracle Mama x 3Navigating Grief and Life After Loss 👼 *****@shermanmandie.com Instagram Handle @shermanmandie + Follow Instagram Followers 12K Type Micro Gender Female Get Email Contact

10. Jamesrich

Bio • Cystic Fibrosis Warrior/Advocate• Creator/Owner of @insight__fitness • Master trainer/ 🥊 coach• Host of @jamesscorner Instagram Handle @jamesrich23 + Follow Instagram Followers 7.8K Follower Growth (2mo) -4% Type Nano Gender Male Get Email Contact

11. Thomas John

Bio •@cf_ireland Ambassador •Health Advocate•𝖣L 🫁 𝖳𝗋𝖺𝗇𝗌𝗉𝗅𝖺𝗇𝗍/Cystic Fibrosis•T1 🩸•@hairartist_tom_pelo_dollLilo Instagram Handle @thomasjhenry87 + Follow Instagram Followers 6K Type Nano Gender Male Get Email Contact

12. Ella Balasa

Bio 👩‍💻Patient Advocate and Engagement Consultant🔗Healthcare Collaborator🗣Speaker 📝Writer 💜cystic fibrosis Personal: @thisgirlellaFind my work 👇 *****@gmail.com Instagram Handle @ellabalasaadvocacy + Follow Instagram Followers 1.2K Follower Growth (2mo) +1% Type Nano Gender Female Get Email Contact

13. Osiris Daniels

Bio I have Cystic Fibrosis. I'm on Trikafta which has been life changing.Every end is a new beginning. Instagram Handle @a_cystic_life + Follow Instagram Followers 832 Follower Growth (2mo) -2% Type Nano Gender Male Get Email Contact

14. Jamie

Bio *****@gmail.com Instagram Handle @drivingmissdesi + Follow Instagram Followers 4 Follower Growth (2mo) +300% Type Nano Gender Female Get Email Contact

15. Kate Eveling

Bio 🕯️ (idk what I’m doing) ✨mental health, unaesthetic life 🎬 new YouTube vlog every friday *****@theviewfromtheotherside.com Instagram Handle @thevftos + Follow Instagram Followers 56.9K Follower Growth (2mo) -1% Type Micro Gender Female Get Email Contact

16. Gunner Esiason

Bio Saved by science 🧬Patient advocate 🫁Dad to Blinky, Blitzen, Kaz & Mieke 🐶🐶🧑🏼‍🦱👶🏻BC ➡️ Dartmouth 🦅🌲#cysticfibrosis *****@esiason.org Instagram Handle @esiason17g + Follow Instagram Followers 13.2K Type Micro Gender Male Get Email Contact

17. Chelsea Stahl

Bio 🫁 Sharing the journey of life and motherhood living with cystic fibrosis 🧘🏽‍♀️ Yoga studio owner & teacher in the US Virgin Islands *****@googlemail.com Instagram Handle @salty_yogi + Follow Instagram Followers 5.6K Follower Growth (2mo) -1% Type Nano Gender Female Get Email Contact

18. Alexie Babin

Bio 🩷 Bilingual Marketing and Communications Coordinator @cfcanada 🌸 Blog writer & Motivational Speaker 🫶🏼 My lungs are weak, but my voice isn’t ✨ Instagram Handle @alexie.babin + Follow Instagram Followers 4.4K Type Nano Gender Female Get Email Contact

19. Ruby Steuart

Bio southern mdemergency medicine PA Instagram Handle @rubysteuart + Follow Instagram Followers 2.5K Type Nano Gender Female Get Email Contact

20. Lauren Black

Bio I'm an adult living with cystic fibrosis! Welcome to this side of my life 🙂 *****@gmail.com Instagram Handle @laurenslifesavers + Follow Instagram Followers 1.3K Follower Growth (2mo) +2% Type Nano Gender Female Get Email Contact

21. Ari & Joe

Bio Identical twin sisters with Cystic Fibrosis. 🏃‍♀️🏃‍♀️ Instagram Handle @twin_cf_sisters + Follow Instagram Followers 915 Type Nano Gender Female Get Email Contact

22. Meckenna Rose

Bio ⚘ ✞ Instagram Handle @mckenna_pozsgai + Follow Instagram Followers 853 Type Nano Gender Female Get Email Contact