Top 20 Cystic Fibrosis Influencers in 2026

1. Mary Frey

Bio Sharing the ups and downs of life with Cystic Fibrosis with my husband @peterfreylife, kiddos and hairless cats Harry and Zion. Youtube TheFreyLife! *****@peterfrey.org Instagram Handle @freyliving Instagram Followers 75.7K Follower Growth (3mo) -1% Type Micro Gender Female Get Email Contact Request 176 Cystic Fibrosis Instagram Influencers with email contacts in a spreadsheet or csv file. Email us at [email protected] Copy emailEmail us

2. Sophie Grace Holmes

Bio Breaking limits with Cystic Fibrosis
Running is my thing 🏃‍♀️
@runna | code SOPHIEGRACE
📩 *****@outreachtalentgroup.com Instagram Handle @sophiegraceholmes Instagram Followers 188.4K Follower Growth (3mo) -1% Type Macro Gender Female Get Email Contact

3. Joshua Llewellyn Jones

Bio Coaching, cars and building brands
Lifted 1m kg’s in 24hrs
Raised over £1m for Cystic Fibrosis
👇🏼 Book a call with me *****@joshlj24.com Instagram Handle @joshlj24 Instagram Followers 45.3K Type Micro Gender Male Get Email Contact

4. Caleigh Sarah Haber

Bio 💯 Living proof that survival doesn’t have to look limited
💫 Chronic Illness, transplant life + rare genetic disease
💬 Connect + stay awhile *****@fight2breathe.org Instagram Handle @fight2breathe Instagram Followers 70.2K Follower Growth (3mo) -2% Type Micro Gender Female Get Email Contact

5. Ben Mudge

Bio Online coach & Warhammer enthusiast
📚16 years of fitness coaching
📕Author ‘Fitness Without Limits’
💻Apply to work with me 👇🏻 *****@benmudge.com Instagram Handle @benmudge_ Instagram Followers 115.8K Follower Growth (3mo) -2% Type Macro Gender Male Get Email Contact

6. Gunner Esiason

Bio Saved by science 🧬
Patient advocate 🫁
Dad to Blinky, Blitzen, Kaz & Mieke 🐶🐶🧑🏼‍🦱👶🏻
BC ➡️ Dartmouth 🦅🌲
#cysticfibrosis *****@esiason.org Instagram Handle @esiason17g Instagram Followers 13.2K Follower Growth (3mo) +1% Type Micro Gender Male Get Email Contact

7. Ella Balasa

Bio 👩‍💻Patient Advocate and Engagement Consultant
🔗Healthcare Collaborator
🗣Speaker
📝Writer
💜cystic fibrosis
Personal: @thisgirlella
Find my work 👇 *****@gmail.com Instagram Handle @ellabalasaadvocacy Instagram Followers 1.2K Follower Growth (3mo) +2% Type Nano Gender Female Get Email Contact

8. Jared Wells

Bio CF warrior
#iam1stphorm
I have cystic fibrosis but it lives w/ me not the other way around
Denver,CO *****@brettjosh.com Instagram Handle @wellsy351 Instagram Followers 57.7K Type Micro Gender Male Get Email Contact

9. Ryan Mo

Bio Servant of Christ ✞
Cystic Fibrosis Advocate
Gym•Faith•Motivation
@legion code: RyanMo
📩: *****@gmail.com Instagram Handle @ryan_mo15 Instagram Followers 39K Follower Growth (3mo) -3% Type Micro Gender Male Get Email Contact

10. Jennifer Nelson

Bio cystic fibrosis, intestinal failure, tpn dependent, v-EDS, & whole lotta other complications and conditions. follow along for the ride!
@returntoskate *****@live.com Instagram Handle @battling2breathe Instagram Followers 23.2K Follower Growth (3mo) -1% Type Micro Gender Female Get Email Contact

11. Mandie Rudd

Bio Thriving while fighting Cystic Fibrosis 🫁
Miracle Mama x 3
Navigating Grief and Life After Loss 👼 *****@shermanmandie.com Instagram Handle @shermanmandie Instagram Followers 11.9K Follower Growth (3mo) -1% Type Micro Gender Female Get Email Contact

12. Jamesrich

Bio • Cystic Fibrosis Warrior/Advocate
• Creator/Owner of @insight__fitness
• Master trainer/ 🥊 coach
• Host of @jamesscorner Instagram Handle @jamesrich23 Instagram Followers 7.8K Follower Growth (3mo) -4% Type Nano Gender Male Get Email Contact

13. Thomas John

Bio •@cf_ireland Ambassador
•Health Advocate
•𝖣L 🫁 𝖳𝗋𝖺𝗇𝗌𝗉𝗅𝖺𝗇𝗍/Cystic Fibrosis
•T1 🩸
•@hairartist_tom_pelo_doll
Lilo Instagram Handle @thomasjhenry87 Instagram Followers 6K Follower Growth (3mo) +1% Type Nano Gender Male Get Email Contact

14. Alexie Babin

Bio 🩷 Bilingual Marketing and Communications Coordinator @cfcanada
🌸 Blog writer & Motivational Speaker
🫶🏼 My lungs are weak, but my voice isn’t ✨ Instagram Handle @alexie.babin Instagram Followers 4.4K Type Nano Gender Female Get Email Contact

15. Chelsea Stahl

Bio 🫁 Sharing the journey of life and motherhood living with cystic fibrosis
🧘🏽‍♀️ Yoga studio owner & teacher in the US Virgin Islands *****@googlemail.com Instagram Handle @salty_yogi Instagram Followers 5.6K Follower Growth (3mo) -1% Type Nano Gender Female Get Email Contact

16. Osiris Daniels

Bio I have Cystic Fibrosis. I'm on Trikafta which has been life changing.
Every end is a new beginning. Instagram Handle @a_cystic_life Instagram Followers 833 Follower Growth (3mo) -1% Type Nano Gender Male Get Email Contact

17. Lauren Black

Bio I'm an adult living with cystic fibrosis! Welcome to this side of my life 🙂 *****@gmail.com Instagram Handle @laurenslifesavers Instagram Followers 1.3K Follower Growth (3mo) -1% Type Nano Gender Female Get Email Contact

18. Jess Meyrick

Bio Early years expert & CF Mama🤍
Conscious parenting | Home life | Helping parents feel more confident, every day.
@sproggle_ @thenannyacademy_ Instagram Handle @thelittledreameruk Instagram Followers 358.2K Follower Growth (3mo) -1% Type Macro Gender Female Get Email Contact

19. Julia Rae

Bio founder @scoreloveshow
running NYC marathon for @team_boomer_usa
actress · singer · CF advocate
📍 probably on a golf course Instagram Handle @itsjuliarae Instagram Followers 50.3K Follower Growth (3mo) -1% Type Micro Gender Female Get Email Contact

20. Ari & Joe

Bio Identical twin sisters with Cystic Fibrosis. 🏃‍♀️🏃‍♀️ Instagram Handle @twin_cf_sisters Instagram Followers 933 Follower Growth (3mo) +1% Type Nano Gender Female Get Email Contact