Top 25 Epilepsy Influencers in 2026

1. Chelsea Leyland

Bio ꜰᴏᴜɴᴅᴇʀ － ᴀᴄᴛɪᴠɪꜱᴛ － ᴅᴊ －
Founder @my.looni
Advocate: epilepsy + endometriosis *****@gmail.com Instagram Handle @chelsealeyland Instagram Followers 63K Type Micro Gender Female Get Email Contact Request 326 Epilepsy Instagram Influencers with email contacts in a spreadsheet or csv file. Email us at [email protected] Copy emailEmail us

2. Tiffany Kairos

Bio ✨ I live with epilepsy & FND | Endometriosis
Patient advocate | Real life, education & humor
🎗 Founder @TheEpilepsyNetwork
👩🏻‍💻 Connect/Collab ⤵ *****@riseaboveepilepsy.com Instagram Handle @tiffanykairos Instagram Followers 9.6K Type Nano Gender Female riseaboveepilepsy.com + Follow Get Email Contact

3. Jaime Simpson

Bio VEDS + Epilepsy + auDHD Advocate
Service Dogs: Echo & Everest | Eclipse 🐺
more than disabled @Jaimealxandra
train. adv◡̈cate. #embraceeveryday 🎙️ *****@gmail.com Instagram Handle @embracingecho Instagram Followers 1.1M Follower Growth (3mo) +10% Type Mega Gender Female Get Email Contact

4. Kenzie Cartwright

Bio Artist & creative
Golf style • lifestyle
💜 Epilepsy awareness *****@gmail.com Instagram Handle @kenzie.oconnell Instagram Followers 123.6K Follower Growth (3mo) -1% Type Macro Gender Female Get Email Contact

5. Dr. Shaun Varghese

Bio 🧠 #Pediatric #Neurologist & #CEO | @thinkneurokids
❤️‍🔥 Obsessed with YOU living YOUR best life
✨ Real talk: #kids #parents #epilepsy #sports #neuro *****@thinkkids.com Instagram Handle @thinkneurodoc Instagram Followers 125.7K Type Macro Gender Male Get Email Contact

6. Sophia Paige

Bio Epilepsy | MCAS | POTS | EDS ✨
Awareness & education 🧠
Compassion takes time🫀
Christ is Lord 🫶🏼
Future nurse 🩺 Instagram Handle @strivewithsoph Instagram Followers 78.9K Type Micro Gender Female Get Email Contact

7. Derra Howard

Bio 📍L.A.🔁LA
Fashion for ambitious women building big lives
epilepsy adv • film •👗stylist
FDR: @sgepilepsyfdn @byderrahoward @styledbydh @luxewithderra *****@gmail.com Instagram Handle @derrahoward Instagram Followers 46.2K Follower Growth (3mo) +1% Type Micro Gender Female Get Email Contact

8. Stephanie Claudia Kamadjaja

Bio Art and Health Enthusiast Vlogger
DM for business inquiries 📩
"EPILEPSY SURGERY AND NEUROSURGERY" Instagram Handle @sclaudiakam Instagram Followers 11.9K Follower Growth (3mo) +2% Type Micro Gender Female Get Email Contact

9. Preeti Singh

Bio TEDx Speaker ❤️Author✍🏼
Epilepsy/Mirgee Seizure Free Warrior 💜 Fauji 🇮🇳A @joshtalkslive Speaker
@typin.grey Chandigarh
Ping to collaborate 😇 *****@gmail.com Instagram Handle @preetisinghepilepsy Instagram Followers 2.4K Type Nano Gender Female Get Email Contact

10. Jo Mumford

Bio Blogger - influencer- digital creator.
founder of Team Jo Epilepsy Foundation - love life
@teamjoepilepsy 💜 #epilepsyadvocate *****@me.com Instagram Handle @tiggerifficjo Instagram Followers 3K Type Nano Gender Female Get Email Contact

11. Camila Figueiredo Coelho

Bio 🇧🇷🇺🇸
• share LOVE wherever you go •
Founder of @camilacoelhocollection & @elaluz
@epilepsyfdn Ambassador & Board Member *****@align-pr.com Instagram Handle @camilacoelho Instagram Followers 10.4M Follower Growth (3mo) -1% Type Mega Gender Female camilacoelho.com/category/fa.. + Follow Get Email Contact

12. Ketaki Chitale

Bio Neurodivergent
Founder and CEO of @acceptepilepsy
DM for promotions. *****@gmail.com Instagram Handle @epilepsy_warrior_queen Instagram Followers 65.6K Follower Growth (3mo) +1% Type Micro Gender Female Get Email Contact

13. Hailey

Bio Growing alongside my daughter, as we navigate this world of medical complexity and disability. Instagram Handle @growing_juniper Instagram Followers 21.8K Follower Growth (3mo) +3% Type Micro Gender Female Get Email Contact

14. Courtney Gano

Bio RIP DAD 11.24.22
@uwsoftball Assistant Coach
@maruccisports Athlete
Mom to an Epilepsy Warrior #PDE *****@gmail.com Instagram Handle @courtneygano Instagram Followers 40.8K Type Micro Gender Female Get Email Contact

15. Paige

Bio changing into a healthier & happier me ✨
wellness journey on weightwatchers 🌻
recipes, teacher fits, epilepsy advocate 💜
*****@changewithpaige.com Instagram Handle @changewithpaige Instagram Followers 19.8K Type Micro Gender Female Get Email Contact

16. Dnaiya

Bio 6 YRS OLD
MIRACLE BABY WITH #hydrocephalus #cerebralpalsy #brainhaemorrhage #infantilespasms #blind
#scoliosis #cvi #hie #epilepsy
🙏🏽PRAY & BELIEVE Instagram Handle @dnaiyahthemiraclebaby Instagram Followers 20.1K Follower Growth (3mo) +7% Type Micro Gender Female Get Email Contact

17. Judo Jabbi

Bio Epilepsy Influencer #epilepsycanada / A&R #julessound / manager / Chef #CookingWithJabbi / arm-bar aficionado / Dakota Judo 💚 / SBGi 🤍 🦓 🦓 Instagram Handle @judojabbi Instagram Followers 1.2K Type Nano Gender Male Get Email Contact

18. Moosey

Bio ☆•°It aint easy being seizey°•☆♿️
TBI, Stroke, Epilepsy, deaf Advocate
SD ‍: @creepycreaturecave
Embrace, Educate, Empower‍ Instagram Handle @moose_mischief Instagram Followers 2.1K Type Nano Gender Female Get Email Contact

19. Nikki Conine

Bio 𝙁𝙧𝙤𝙢 𝘽𝙧𝙤𝙠𝙚𝙣 𝘿𝙧𝙚𝙖𝙢𝙨 - 𝙏𝙤 𝙇𝙞𝙫𝙞𝙣𝙜 𝙖 𝘿𝙧𝙚𝙖𝙢
It’s all about 𝓶𝓲𝓷𝓭𝓼𝓮𝓽
♡ 𝙇𝙞𝙫𝙞𝙣𝙜 𝙬/ 𝙀𝙥𝙞𝙡𝙚𝙥𝙨𝙮 ♡
Lets GΛMΣ 🎮
@ EnviousDevil13 - ᥊᥇ꪮ᥊ *****@gmail.com Instagram Handle @nikkiconine Instagram Followers 2.3K Follower Growth (3mo) -2% Type Nano Gender Female Get Email Contact

20. Kesna Maxwell

Bio Twin Mum
Skincare ✨
Foodie
Influencer
living with Fibro & Epilepsy Instagram Handle @kesna_maxwell Instagram Followers 1.2K Type Nano Gender Female Get Email Contact

21. Ally

Bio {mom. wife. photog. home gardener zone 9a. adoption mama. epilepsy mama. baker.}
📷: @allyson_ell_photography
♥️: #theells2024 🌱: #allygrowsthings Instagram Handle @squishyprints Instagram Followers 1.5K Type Nano Gender Female Get Email Contact

22. Im Every Mom

Bio Sharing life's 𝐆𝐫𝐨𝐰𝐬 & 𝐆𝐥𝐨𝐰𝐬 to build community with 𝐄𝐕𝐄𝐑𝐘 𝐌𝐎𝐌!
-Fraternal Twin, Trach & Epilepsy Mom
-Everyday Mom Held Together by Faith & Coffee Instagram Handle @imeverymom Instagram Followers 1.1K Type Nano Gender Female Get Email Contact

23. Rosy Zimmerman

Bio •Wife
• Mom to a Angel Baby w/Muscle Eye Brain Disease, Hydrocephalus, Epilepsy, & leaky SCID Instagram Handle @mama.of.a.warrior Instagram Followers 957 Follower Growth (3mo) +1% Type Nano Gender Female Get Email Contact

24. Rylee

Bio Just a little girl, doing some big things 🧚🏼
🎙️ @hwgh.pod
🧠 Cerebral palsy
🧬 KCNQ2
📍 Brisbane, Aus *****@gmail.com Instagram Handle @_allthingsrylee Instagram Followers 4.6K Follower Growth (3mo) +4% Type Nano Gender Female Get Email Contact

25. Jill V. Aguiar

Bio Special needs mom + menopause = surviving on prayers, laughter, hormone therapy, & good hair products
TikTok: Himynameisjillll Instagram Handle @himynameisjillll Instagram Followers 6.1K Follower Growth (3mo) +29% Type Nano Gender Female Get Email Contact